Fig. 1
From: Erythropoietic protoporphyria: case reports for clinical and therapeutic hints
Erythropoietic Protoporphyria - Quality of Life (EPP-QOL) questionnaire. The questionnaire includes 12 items and 4 answer options. Depending on the answer there is a minimum (0) or maximum (3) score. The total score is between 0 and 36, higher scores indicating a better quality of life